Notes from a feeding workshop for parents of tube fed kids

Our daughter has been on a feeding tube since she was two days old and has had a mic-key button since she was about 6 weeks old. I went to a workshop for parents of kids with feeding tubes at Rady Children's Hospital in San Diego with Marsha Dunn Klein of Mealtime Notions around early 2007.

I added my notes as an info page. Some of the key points we took away:

  • Tube feeding should be social, like a meal time
  • Should be celebrating experience with food (touch, smell, etc, not just eating)
  • It’s not about how much at first

Hope the notes can help someone and if you have notes from a workshop or seminar that you attended that may help someone else, please feel free to add them using the Create an Info Page link.

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